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About the Disease

HOMOZYGOUS FAMILIAL HYPERCHOLESTEROLEMIA

About the Disease

About our Patient Care

Homozygous Familial Hypercholesterolemia (HoFH) is an uncommon genetic condition that is inherited from both sides of the family and leads to high levels of cholesterol in the blood. It is characterized by marked elevation of low density lipoprotein cholesterol (LDL-C), xanthomata and premature cardiovascular disease. Untreated, HoFH often causes heart disease in the early teen years and sometimes even in early childhood. The LDL-C (bad cholesterol) level of an untreated person with HoFH is over 4 times the normal level.

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About our Patient Care

Our dedicated Care Team will work with the physician's office and insurance on a patient's behalf so that our patients have more time to focus on their treatment and quality of life. We are here to listen, provide 

counseling on treatment, including side-effect management, and assist with sourcing third-party financial assistance.

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As part of treatment, we provide:

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Dedicated Care Team

 

We provide prescribers and patients with a dedicated care team for each of our disease state programs. This includes a primary pharmacy contact, clinical education, side-effects management, scheduled refill calls, and a direct phone, fax and email address.

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In-Home Patient- and Family-Centric Care

 

We administer a nationwide nursing network, allowing patients to pursue in-home treatment or receive training on self-administrated drugs. Our nurses are ideally positioned to establish a partnership with patients and their families in order to provide clinical education and coaching that strengthen the patient's capacity to achieve therapy goals.

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Shipping and Coordination of Care

 

We provide free overnight delivery of medications and necessary medical supplies and manage the coordination of care between prescribers, sites of care, nurses and patients to ensure dispenses and drug delivery align with the date and location of service.

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Financial Assistance

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We successfully identify and assist enrolling patients into any and all manufacturer co-pay and foundation support programs in order to minimize a potential financial burden to patients given the high-cost of specialty medications.

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Supported Treatments

24/7/365 Access to a Pharmacist

 

We provide prescribers and patients access to a pharmacist 24/7/365 to ensure patients are always cared for.

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  • Berinert (C1 esterase inhibitor)
    Brand Name | Berinert Manufacturer | CSL Berhing Route of Administration | Intravenous (IV) injection Approved Indication | Treatment of acute abdominal, facial, or laryngeal HAE attacks in adult and pediatric patients Self-Administration | Yes, after training Product Website | www.berinert.com
  • Cinryze (C1 esterase inhibitor)
    Brand Name | Cinryze Manufacturer | Shire Route of Administration | Intravenous (IV) injection Approved Indication | Routine prophylaxis against angioedema attacks in patients with HAE Self-Administration | Yes, after training Product Website | www.cinryze.com
  • Firazyr (icatibant)
    Brand Name | Firazyr Manufacturer | Shire Route of Administration | Subcutaneous (SC) injection Approved Indication | Treatment of acute attacks of HAE in adults 18 years of age and older Self-Administration | Yes, after training Product Website | www.firazyr.com
  • Haegarda (C1 esterase inhibitor)
    Brand Name | Haegarda Manufacturer | CSL Behring Route of Administration | Subcutaneous Approved Indication | For routine prophylaxis to prevent HAE attacks in adolescent and adult patients. Self-Administration | Yes Product Website | www.haegarda.com
  • Kalbitor (ecallantide)
    Brand Name | Kalbitor Manufacturer | Dyax Corp Route of Administration | Subcutaneous injection Approved Indication | For routine prophylaxis to prevent HAE attacks in adolescent and adult patients. Self-Administration | No Product Website | www.kalbitor.com
  • Ruconest (C1 esterase inhibitor)
    Brand Name | Rocunest Manufacturer | Pharming N.V. Route of Administration | Intravenous (IV) injection Approved Indication | Treatment of acute attacks of HAE in adult and adolescent patients. Self-Administration | Yes, after training Product Website | www.ruconest.com
  • Takhzyro (lanadelumab-flyo)
    Brand Name | Takhzyro Manufacturer | Shire Route of Administration | Subcutaneous injection Approved Indication | Prophylaxis to prevent attacks of hereditary angioedema (HAE) in patients 12 years of age and older Self-Administration | Yes, after training Product Website | www.takhzyro.com

Supported Treatments

Partnering with Prescribers

Partnering with Prescribers

Licensed prescribers can submit a completed enrollment form directly to our Admission team. We will begin the process and communicate with your office every step of the way.

Send Us A Script

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